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Honorees

Honored Heroes share their stories to let other patients know they are not alone on their journeys — because no one should face the challenges and uncertainty of inflammatory bowel disease (IBD) in isolation. Through their stories, Honorees raise awareness of these diseases, raise funds to support the Foundation’s mission and inspire hope in those living with IBD.

To nominate a Take Steps Honoree, please complete this form.

Dr. Perlman

I have a very strong family history of IBD. Among others. From hearing stories in my family, from an early age I knew how such a diagnosis could impact the fabric of a family. I also recognize how spectacular it is that we have all of the new therapeutics- biologic and small molecules that have revolutionized the care of patients with IBD. Had these existed when my uncle was younger, perhaps he likely would still be here.

I enjoy getting to know families and take great pleasure helping them through their experiences with Crohn's and colitis. I think my personal experiences help me support them with understanding and compassion. 

 

Anna Yarberry

I went two years going undiagnosed, with stomach issues, and weight fluctuations. I was severely underweight, and no one could find out what was wrong.  After numerous MRIs, MREs, labs, and late night ER runs, I was diagnosed with Crohn’s through a colonoscopy in April 2022. A week after being diagnosed, I ended up in the ER once more with a soon to be called Bowel Obstruction. 

Throughout the hospital visits, I utilized social media as my outlet to alleviate some of my stress. I found that reaching out to people not only helped others understand my situation but helped me understand what was happening to my body as well. 

Camp Oasis itself has a very big space in my heart and impact in my life. Witnessing its effects on kids half my age is something that I will never get over. It is a sense of belonging that, unfortunately, not everyone gets the chance to experience. With it being my 3rd year this year in 2024 attending, I plan on being a junior counselor next year! 

Crohn’s is something that I do not let define me, and I want to teach others that it should not define them either.
Thank you for your kindness and effort to include me in the future!!

 

Juliet Goodwin

When I received my diagnosis of Crohn's disease of the small and large intestine at the age of 12, I felt both fear and relief. In late 2020 I was losing weight and stopped growing. I was feeling fatigued and dizzy most of the time. I had unexplained GI pain and fevers. While I was scared, I was relieved to know we could make a plan for my care. Once I was paired up with a great team of doctors at Children's hospital, I learned more about the Crohn's and Colitis foundation. Many doctors suggested participating in both Camp Oasis and Take Steps. Through these events I began to feel supported and seen. When you have a disease that you can't  see, it's hard for a typical person to understand your struggles. In March of 2023 I found out I was in remission. Like so many peers I met at camp, I could finally celebrate a victory in my IBD journey. Because of Take Steps, my hope is that someday everyone with IBD will achieve remission. Better yet, be cured of this invisible disease. 

 

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